green: raven (Default)
Had a dream that MCR was playing a tiny secret show at Taco Bell. I got there and was really close to them, but suddenly they started playing a song I didn't know! And I was like 'ooh, new song!' but then everyone else was singing along and I felt so left out and confused.

But then I got to lick Gerard's neck and it was okay.

***

I have a thousand words of a new fic that should be done in a few days. It's an auction fic and I really like it.

***

Had to pick Meg up from school yesterday because of all the seizures she was having. She's home today. She goes to see her regular neurologist next week. Hopefully he can undo whatever harm has been done to her by the new, incompetent neuro.

***

I'll make locked post soon about my sex life. I know you can't wait for that. :P

***

I don't know why this mood icon is supposed to be 'stressed' (here on DW, I mean). Bros do not look stressed to me.
green: raven (Default)
Good news! My weird neurological symptoms are caused by a vitamin deficiency.

Also, I got tested for diabetes and am waiting for the results. It will take a couple of days, might not be until Monday or Tuesday. It's a possibility that this is why I'm thirsty and pee all the time. /tmi

Meg has asthma on top of the seizures now.
green: raven (Default)
can't decide whether I want chicken tacos or ground turkey tacos. def want to make tacos, though.

dear december: you suck.

meg got sick again today like she has the three other times in the past few months -- lethargic, pale, clammy, can't walk. took her to the doctor. doctor ordered blood work, but otherwise doesn't know what's up.

wednesday meg has an mri. on the 22nd, she's going in the hospital for tests for a few days. I start PT on thursday. I have finals next week. I am so stressed. meanwhile, mom is nuttier than usual.

and I can't decide what kind of tacos I want to eat.
green: raven (stock: umbrella)
it's still raining. it was raining yesterday and it's raining today.

meg is ill. her legs aren't doing too well. no idea what is wrong with her. since the doc could only say it's 'probably something neurological, maybe' the last time, we're not taking her to the ER again.
green: raven (random: religion is kindness)
I've been answering questions at 10Q for the holy days. Just some questions to spark reflection on the past year and inspiration for the next. You can choose to keep your answers private, which is what I'm doing, and they're emailed to you the following year.

The main thing I'm focusing on is my relationship with my mother. However, repairing a relationship isn't something one person can do on their own, and trying to do it two different ways doesn't work, either.

*

Meg is sick again today, and home from school. This time it's some kind of stomach thing. She's sleeping now.
green: a mother lion licking her cub (stock: mommy and cub)
Despite the TEN SEIZURES Meg had in the ER, she's home and is doing okay. They think her leg thing is neurological. Since she just went to the neurologist yesterday and everything was fine, idk what they can do. They don't know, either.

Right now Meg is home and in bed sleeping.

Thank you for all of your well wishes, prayers, and hugs.
green: raven (bandom: ray at mic)
* went to the neurologist with Meg today and everything looks good for now. no changes in medications this time.

* I've just got to the point in my Highlander viewing where I'm singsonging 'boyyyyyfraaands' all the time and making hearteyes at Methos. Anybody got any recs for Duncan/Methos fics?

* fic I am writing with Aka is super duper long. I do not look forward to the editing process on this one.
green: raven (due south: diefenbaker)
I am so happy that the hurricane is missing us. We have been lucky this hurricane season. *knocks on wood*

1. School: I spoke too soon on Algebra being fun. Today we were doing this factoring polynomials stuff and I did not get it all and had a hard time doing my homework. I'm going to do it again tomorrow. and the next day. and the next day, and hopefully by Monday I'll be ready to learn something else. :| Biology is going to be tough, too, but I think as long as I study every day I'll be okay.

2. Tomorrow I go to the local high school and hopefully strike up a friendship or something with the principal. idk idk. I am not a talky person like my mom, who can talk to people about things they are interested in and make them like her. I usually stay silent until I have something important to say, else I blurt out something stupid.

And then after I've talked to the principal, I probably have to go to the school board to get my background check process started.

3. Meg is having fewer seizures this week! \o/ \o/ \o/ We think it has something to do with school and less tv watching, but we're not sure. Supposedly she does not have the kind of seizures that are brought on by flashing, and we don't watch shows that do a lot of that, but still, the tv might be a factor.

4. ...oh, is this tab still open and I have not thought of something else?

prom!

May. 1st, 2011 08:24 am
green: raven (Default)
Last night I went to a prom populated by kids with (mostly developmental) disabilities and had the time of my life. I can't even describe the energy and happiness. Unfortunately, I left my camera in the car (like a dork) instead of bringing it in to the prom, so I've only got pictures of the before and after.

Meg was absolutely beautiful in her green sparkly dress. She had a fun time, too. She loved the dancing (even though she didn't do much of it herself, she was grinning a lot while watching everyone else).

pic of meg in her dress! )
green: raven (stock: tired)
everything is going so bad. I need money desperately for food and gas to get to meg's neurologist appt on monday. if anyone could help me out that would be wonderful.

EDIT: I had to deny the money sent me because they wanted me to jump through hoops to get it, I think because I used the button. could you maybe resend if you sent me something directly to anthony.melissa@rocketmail.com at paypal? I think that'll work.

(I wouldn't ordinarily do this, but DCF is dicking me around on my food stamps this month and I really need money for food and gas.)
green: raven (bandom: frank/gerard)
I keep going to make an entry and then clicking out without typing anything.

*deletes post full of feelings about a certain SPIN article*

UGH. I thought I could talk about it without sounding irrational, but I guess not. :\

ANYWAY. I'm having a bad day. Meg is home sick for the second day in a row. Mom is also sick, and kind of ... well, she doesn't like me today, or something. (I'm selfish and self-centered and the world revolves around me and oh, I'm a shitty mother, too.)

I love S/C/A/R/E/C/R/O/W.

I dislike Summertime.

I need to get to work on writing. And beta reading. If I can concentrate, which ... HA, guess what? I CAN'T.

update

Sep. 7th, 2010 10:16 am
green: a mother lion licking her cub (stock: mommy and cub)
tomorrow we're taking meg to the neurologist. her gait has gotten a lot worse lately and she's fallen many times. in case you don't know, meg has autism and cerebral palsy, causing her to walk on her toes. she wore AFOs (ankle-foot orthotics; braces) on her feet when she was younger, but they irritated her skin and dug into her calves. we decided to just let her toe walk as long as it didn't worsen. and for years it was fine, until lately she's started toeing in as she walks and dragging a foot slightly behind her as she takes a step. the CP is worsening, so she'll probably need extra PT (more than she gets at school) and new AFOs or similar. hopefully that will be the end of it.

she's also been tired a lot lately (sleeping maybe 15-17 hours out of 24 some days), but now that we know she had an infection, that might be why. we'll mention it to the doc and see what he says.

***

I probably won't post tomorrow, so for those of you who celebrate, Shana Tova! May you be inscribed and sealed for a good year.
green: a mother lion licking her cub (stock: mommy and cub)
Spent the night in the ER last night. Meg had a seizure lasting over 20 minutes so we rushed her to the hospital. We were only there three hours but it felt like all night. They gave her some valium and ran some tests. She got a fever while she was there and her urine came back and she has a UTI. Poor baby.

She seems to be feeling better today. Still, those long seizures like that are scary and I'm still pretty shaken up even if she isn't.
green: raven (stock: green dress)
Day two of not smoking and I'm STILL NOT SMOKING. :DDDDDDDD

Today we went and got Meg a wheelchair. She walks on her toes and can't do distances, so this is for special occasions where we get out and do things. Or when the parking garage is a mile from the place we need to be. You know, those kinds of things.
green: a mother lion licking her cub (stock: mommy and cub)
I have to get up at 6:30 in the morning to get ready and then drive to Ft. Walton to Meg's regular neurologist. Ugh. DNW to get up so early. :(

My back was hurting so I took 2 Lortab and now I'm feeling NO pain whatsoever. In fact, I'm pretty stoned. The only problem with the Lortab is that it makes me itch. Don't ask me why, it's just a weird side effect. Itchy itchy itchy.

DJ is going home on Friday. I'll miss him, but he's pretty homesick.
green: a mother lion licking her cub (stock: mommy and cub)
Meg has something called cardiomyopathy. Don't know much other than that. Doc was less than helpful in explaining what's going on.

Staying at a hotel tonight and driving back home tomorrow.
green: raven (stock: tired)
I have to take Meg to Gainesville again today. NO FUN. We're seeing the cardiology department, for what reason I can't tell you (because I have no idea) and then we are staying over at a hotel tonight and driving back tomorrow morning.

I would much rather stay home. Oh, well.

In lighter but more exasperating news, I still have Total Eclipse of the Heart stuck in my head. I jokingly said to Amy that I'm going to make a Lost icon set to the song. She encouraged me to do so. IDK, maybe I will.

TURN AROUND, BRIGHT EYES!
green: raven (Default)
Meg had an EKG today to test her heart, but it's probably fine. They just need to test just in case, for the new med they put her on.

She's scheduled for an MRI tomorrow morning, and will get her electrodes off right before that.

She's antsy and ready to get the hell out of the hospital.

The hotel I got today doesn't have room service. :( But it has a microwave and I bought some Lean Cuisine. And ice cream. I really need the ice cream.
green: a mother lion licking her cub (stock: mommy and cub)
The thing with Meg and hospitals is that they want to restrain her. And DNW restraints. They piss us off.

So after arguing with the EMU team (who were refusing to put the electrodes she pulled off back on unless we restrained her), I talked to her doctor and argued with HIM. I cannot tell you how many times they all tried to tell me that 'oh, soft restraints aren't PAINFUL'. Yeah, well. They piss me off and they piss Meg off. So finally they listened to me and put mitts on her (like boxing gloves) so that she wouldn't pull at the electrodes. (And I asked the EMU woman how many were on her and she's like 'oh, just 27')

My mom didn't get any sleep last night but she wanted me to have the hotel room again tonight. I argued with HER, but she was afraid she'd get lost driving in Gainesville (even though we could've called the shuttle, she still wouldn't take the hotel room)

So here I am again in the hotel.

OH. The hotel? Has no rooms for Thursday and Friday night. It's graduation weekend and apparently all the hotels (or at least the first ELEVEN) were booked solid. Finally, on the twelfth call, I found a room for Thursday and Friday night, and booked it.

I wish I was around to post comments on all the WONDERFUL Three Weeks For Dreamwidth posts. There's a couple of comment fic/kink memes going on that I want to participate in but can't. Hopefully next week will be back to normal.
green: raven (Default)
OMG YOU GUYS. *CLINGS*

Hospital was the hospital. You know, sucky. Meg is not happy having 15-20 whatever number electrodes stuck to her scalp. Or that she has to stay in bed. Also, the nurse we got doesn't listen to us and thinks she knows better than we do about Meg. >:(

Right now I'm in the hotel, looking at the room service menu. I could get gator tail! It's on the menu and everything!

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