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meg has casts on her legs now. she's not happy about this. it means less mobility, and while she wasn't really super mobile to begin with, she's lost a bit of freedom and she's cranky and stubborn about it. she hasn't fallen yet (*knock on wood*) but today is her first day back at school. I hope they keep a proper eye on her. I mean, I think they will? they're pretty good there. but still! I worry.
the other thing I'm worrying about is that even with the casts, she's still managing to almost/kinda walk in her toes. I don't know how she's doing it, but she is. wait, no, that is not the other thing I'm really worried about -- the other thing is that the orthopedist says is that surgery is probably our next step. they will cut meg's muscle (both legs) and put her in casts again for about 6 weeks while it heals, and hope it works.
she's been on her toes her whole life, except for the times we've tried AFOs, but that never lasts long because they always rub the wrong way and cause blisters. the first set when she was around 7 years old weren't as bad as this last runaround with the AFOs, which produced blisters all over her poor feet. they were not good :(
but anyway, if it was just the toe walking it would be fine. a lot of people have CP and toe walking is okay. it's not em>great but it's okay. but meg's feet do this weird bendy/draggy/gonna topple over any second thing, so we really want to do something about it. (before she loses her awesome childhood insurance!)
but surgery/cutting into the actual muscle seems like too much. mom is against it. I'm leaning toward it, though. so yeah, we'll probably end up fighting about it. :/
meg gets these casts off on the 11th and then we'll talk to the orthopedist from there about the possibility of surgery.
Mom has been having blood pressure problems. It's worrying and stressful, but apparently I'm not allowed to worry or stress about it because that makes her feel worse. *throws hands up*
Oh hey, but I got SNAP again. \o/ Grocery store, here I come! Um, if I can. /o\
the other thing I'm worrying about is that even with the casts, she's still managing to almost/kinda walk in her toes. I don't know how she's doing it, but she is. wait, no, that is not the other thing I'm really worried about -- the other thing is that the orthopedist says is that surgery is probably our next step. they will cut meg's muscle (both legs) and put her in casts again for about 6 weeks while it heals, and hope it works.
she's been on her toes her whole life, except for the times we've tried AFOs, but that never lasts long because they always rub the wrong way and cause blisters. the first set when she was around 7 years old weren't as bad as this last runaround with the AFOs, which produced blisters all over her poor feet. they were not good :(
but anyway, if it was just the toe walking it would be fine. a lot of people have CP and toe walking is okay. it's not em>great but it's okay. but meg's feet do this weird bendy/draggy/gonna topple over any second thing, so we really want to do something about it. (before she loses her awesome childhood insurance!)
but surgery/cutting into the actual muscle seems like too much. mom is against it. I'm leaning toward it, though. so yeah, we'll probably end up fighting about it. :/
meg gets these casts off on the 11th and then we'll talk to the orthopedist from there about the possibility of surgery.
Mom has been having blood pressure problems. It's worrying and stressful, but apparently I'm not allowed to worry or stress about it because that makes her feel worse. *throws hands up*
Oh hey, but I got SNAP again. \o/ Grocery store, here I come! Um, if I can. /o\